Break explanation

Hello Lovlies,

OMG two weeks out! I do apologise for taking a two week break but we all need time off right? Things just got on top of me I suppose, not taking my anti depressants didn't help. I know I know I need to take them  and can't come off them cold turkey but what's a girl to do when the funds aren't there? I needed to pick up my prescription from the chemist but as one of the few on a low income but for some what reason the government decide don't need help I wasn't able to afford to pick up my medication. I pay for my scripts as and when so its a nightmare!! That reminds me I should set up the pre paid thing. So yeah I've been feeling pretty low. Along with that I've had trouble sleeping. I don't know why. I'll have terrible problems falling asleep and then when I do go off I cant hold a sleep and will be waking up every hourish. That along with having low iron levels has left me walking around like a zombie. I am on tablets for my low iron but I am a nightmare for remembering to take the damn things, anyone else like that? Things come to ahead Friday when Katie insisted I go doctors and accompanied me for moral support. I broke down in there after getting prescribed medication to help me sleep. That wasn't before the bloody doctor pre judged me as a weed smoking alcoholic. Apparently when  you cant sleep and turn up with no make up on that's what you automatically become.

Thanks to Katie for buying my scripts for me I was finally able to get back on the mend by taking my anti depressants again and taking my sleep meds. After a few nights good sleep I'm starting to gradually feel a bit better and more relaxed. Relaxed enough to start blogging again. If I am honest I've missed my blogging in the last couple of weeks, it makes  me feel so much better. Being able to vent and let you guys what's going on makes me feel good. It just a shame that no matter how much I wanted to get back on the laptop I just didn't feel able to.

Not to worry now though, I am back, I've had a break and I'm looking forward to writing for you all again. This was a post to let you know why I've been quiet and to read our posts this week, starting with one tomorrow :)

Thanks for reading :)

Until next time...

LotsOfLove
Beth...xxx

Feeling alone By Katie

 

 

 

 

 

 

Feeling alone

 

 

At the weekend my health messed up a family fun day Saturday which made me rather sad and couldn't help but feel alone! 

When you have chronic illness you feel so alone. When I say alone I mean because I have no one in my family that suffers with a chronic illness similar to mine so it's genuinely hard to talk out loud about my health as they do not understand. Alone because most family birthdays meals I cannot attend because I'm either in a bad flare or can't eat anything on the menu so I'm left at home alone and I end up feeling so isolated. The one thing that really upsets me about missing family occasions is when I get certain family members saying that I'm choosing to not go out and that I don't want to socialise which couldn't be further from the truth. Of course I want to go out, attend all family meals or events and socialise but I've realised that you HAVE to put yourself and your health first. I've spent many times sitting in a restaurant putting on a totally different mask and acting fine when in reality I'm sitting there with stomach cramps, my joints are in crippling pain and my eyes are wanting to close from severe fatigue. The smile I put on in those situations is totally fake. How can I smile when I'm in so much pain. Sometimes putting on an mask and a fake smile doesn't  work in my favour! Unfortunately It makes some of my family members think that I am absolutely fine and that I am lying about being ill. It leaves me thinking what is the lesser of two evils? Grinning and bearing the family meal in crippling pain or putting myself first and not going and facing the criticism of some not so understanding family members.

 

The weekend just gone, I planned to go to Battersea Old Windsor Fun day on the Saturday with Beth, my nieces and my brother, we planned this ages ago and we was all looking forward to it. The evening before I got ready to have an early night then all of a sudden my colitis really flared up big time to the point where I was on the toilet from 10pm until 7.40am so I was incredibly exhausted from just running back and forward to the bathroom. At 8am I thought lets get an hours sleep so I can have some energy for the day out but soon as I closed my eyes, my bowel had other ideas meaning I had no other choice than to cancel the plans and stay in bed instead. I was so exhausted and the toilet trips continued till Saturday evening and I was home alone so I felt even worse and more alone. 

Luckily I have my three dogs who drive me mental but they follow me to the toilet, cuddle me on the sofa, always by my side in bed and make me laugh. I am so glad that I live with my Mother, something I thought at 24 years old that I wouldn't say but honestly I couldn't be without her. 

I really hope that my health starts to improve as I hate missing out on all these family events, I will be sure to keep you all update on my health and my story.

until next time

Katie x

My Mind And Me - Getting sorted

Getting Sorted

So here I am taking my antidepressants like a good girl, 40mg I was on a high dose. At that point it hit me that I really had a problem, I was depressed and I needed help. Like all antidepressants you have to wait for them to kick in, sometimes its like waiting for a train you've already missed. I was quite aware that I couldn't go on the way I was, not for one more second so even though I was on medication and although I had to give it time before I noticed a difference, I needed extra help. That's when my health visitor referred me to Talking Therapies, a wonderful service of counselling provided by the NHS in Berkshire. I would have 6-8 sessions to get to the root of my problem, because it was NHS based ect and the high amount of people that needed the service you were given a certain amount of sessions.

I was up for it, I think I would have took any help at the time. The first step was a telephone assessment. This made my anxiety so bad, I suffer with telephone anxiety you see and this was my idea of a nightmare. I thought so many times about ignoring the phone call or just cancelling. These thoughts went round and round in my head for the week that I waited, It was like a Ferris wheel in my head, for that entire week I was on edge and as you might have guessed that played to my depressions advantage. I was so relieved  when I got it out the way and optimistic as I had been given a date for my first session. Optimistic for the first few days after getting it more like. As the date got closer the more nervous I got and the more I questioned whether I actually needed to go. I thought old thoughts of I can sort this out myself despite trying and failing miserably beforehand.

On the morning of my first appointment I was ok, I don't think it seemed real and I was busy being a mummy to think about the days events, I also had Katie with me that distracted me too. Katie was really good she booked the cab and gave me a big help in hand getting the girls sorted because as it came to getting ready to go I could feel myself physically shaking. I could feel my breath getting short and myself not thinking straight, I could feel my eyes wanting to leak and I knew what was coming. A panic attack. I needed to stop it because I new if I went into a full attack I wouldn't go, I'd slump  back down into the sofa and pretend I was ok. To calm me down I took a couple of propanadol (tablets for anxiety) which I had previously been prescribed. They do work a treat but on that day they only scraped the edge off as my anxiety was through the roof. Still I put on a brave face for my children and tried to have fun and make them laugh as much as I could in the cab there, may I add the cab driver got lost, that was all I needed.

It was like the walk of doom walking through the hospital to where talking therapies was based. I felt like I was walking into a trap of my own thoughts, feelings and memories. I'm not silly I know what happens  in counselling, you have to talk about things that had happened in the past. If you were to ask me if I were ready to open up about my past I would have said, for my family to have a better person to live with, yes of course I was ready but for me not I wasn't ready, I felt like holding back because the thought of bringing up old memories seemed harder to live with than the depression. I bet you wondered what made me go in and not run a mile, well my family for one, I wasn't going to let them down and maybe I needed to confront my past head on, like confronting a fear. I knew the key to getting better was hid in my memories I just needed to find it.

As I sat on the chair, I felt like a rabbit caught in headlights, I didn't know what to say where to look what to do. Luckily for me It wasn't going to be the nitty gritty of a proper counselling session, this first one was just about going over my assessment, unfortunately we did touch on my past a bit. When it came to it I hesitated, I stuttered I tried to open up a couple of times. I really did try, my mouth would open but nothing would come out it was like someone had put me on mute. Something strange then happened, it was as though someone inside gave me a shove and all of a sudden I was taken off mute and words kept pouring out. You couldn't stop me. Before I knew it the first session was over. It weren't even a proper session it was just an assessment but I felt something had been lifted from me.

I remember feeling good after that day, I felt really positive for the next week and I actually found myself looking forward to my first proper session. But was my positive attitude about to change as I come closer to my first proper nitty gritty down to business counselling session.

Watch out for My Mind And Me next week

Thanks for reading

Until next time

LotsOfLove
Beth...xxx

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My Mind And Me - Anger Awareness

Anger Awareness

Through the whole obsessive side that I spoke about last week, the anger came through. I guess its linked in someway. Though I didn't realise. What I did realise was that I was getting a very angry person, snapping left right and centre and I didn't know how to stop it. I felt like a puppet on a string being controlled by pure anger, it had control of me rather than me having control of it. Yes it crossed my mind that I had anger issues but something didn't sit right with that, I have seen people with anger problems who needed anger management and mine weren't that, somehow it seemed deeper.

I would be a crazy bitch sometimes, at about 5 holding my phone waiting for a phone call from Tommy telling me he had finished work, if by half past I still hadn't heard I would feel it bubbling from the pit of my stomach coming up through my arms to my hands, to my head. I would text him and have a go, wtf he was only working. But to me that didn't matter. He had finished at 5 the other day so  it should be like that today. No excuses. Though with his job there is no finishing time. I think this comes down to a bit of OCD. I have trouble with change. I like certain things in a certain way, like with Tom working I like him to have his finishing at a certain time and when its changed like any other change it drives my mind nuts and I get irritable and angry.  At this point I was stuck in limbo, the property search was low key and things at my mums were getting stressful its no doubt that it tested mine and Toms relationship. And its no wonder my anger started escalating.

I had mentioned before that I would be very happy when we went out no matter where it was, but now that was all changing, though I was still happy I was getting more snappy on our outings wheras before I wouldn't. The angry side of me wouldn't be afraid or embarrassed to make an appearance in public, and I would have a go at poor Tom in the middle of a shop, believe me I wanted to slap myself. They say you take it out on who you love the most but come on it was getting ridiculous now. Before I was convinced I weren't the problem, that it was everyone else but now I was starting to see that it weren't them.. it was me. That was tough to swallow but I think it was a real turning point for me. I knew I needed advice, embarrassed to go to anyone else I went to my sister she had suffered depression ect so I knew if anyone knew how to help it was her. There was Katie yes but I didn't want her thinking I was weak, not that I think depression is a weakness infact its pretty much the opposite, but at the time all I thought was I'm the one that gives advice that's there for her not the other way round, Katie needed support and I was afraid that if she thought I was going through stuff of my own then she wouldn't come to me for help when she needed me. So here I was in front of my sister telling her how horribly worked up an angry I felt all the time, and that I didn't know what it was or how to control it, it was bringing me down. She was sympathetic and gave me the advise I needed. She told me it was a symptom of depression, which I had no clue of. She advised me to see a doctor. I still didn't do this for a good two weeks after.

After 2 weeks of trying to convince myself..and others that I was fine I sat in the doctors room Tommy sitting outside with the girls. I can't tell you how many times I thought about running away. I cant tell you how many times I thought I didn't belong there and I cant tell you how many times I told myself I needed to be there. I was frozen, like I had superglue on my butt I couldn't move off that chair even if I wanted too. I was stuttering when I told him why I was there, I was worried he was going to laugh at me and tell me to piss off. But he didn't. He was kind, so understanding. He prescribed me medication, a low dose but I felt as though I was finally going to start calming down.

I want to highlight, that anger is just as much a part of depression as crying and feeling sad is though its not really highlighted. I want you to know that if you feel like you are constantly angry or annoyed don't be afraid to ask someone if it could be due to depression. So many people aren't aware but I hope buy reading this post it helps.

Look out for My Mind And Me next week

Until next time

LotsOfLove
Beth...xxx

Katie's Health Update #9

So my last health update was only a few a weeks ago here but since then I have a few things to update you all on.

COLITIS
Yesterday I had an appointment at the hospital for a check up and instead of the appointment being under the Gastroenterology clinic, it was under the general surgery clinic which I didn't understand why to be honest and nor did the Doctor. Luckily the doctor I saw is someone I have been under for nearly 3 years now so she knew my history and what was going on. She looked at my report from my last colonoscopy and explained where my Colitis is and told me a lot more than I ever have been told. I explained to her how I don't think Asacol are doing much for me anymore and my flare up is so unbearable at the moment. She wrote me out a prescription for Steroids (not sure what they called) and has put me under the Gastroenterology department and for them to see me urgent/in few weeks time. I took my Mother with me and I am glad to be honest as it is always different from a doctor explaining my condition rather than me. So although my flare up is bad at the moment, my fatigue is horrible, still loosing weight and eyes are being affected but I felt like finally the hospital are doing something about it. 

ARTHRITIS
My Gabapentin medication have been upped to 300mg and the side effects from the 200mg was affecting me a lot so now it is higher the side effects are worse. The side effects are worth it to be honest as the medication itself does help with my back pain. I get  days where my back is in bits and then days where it is manageable with painkillers but never a day where I am not in pain. Over the past few weeks the pain has been going back of bum, legs and near my hips which happens every now and then. When the weather gets cold my Arthritis plays up a lot so although I love the cold weather, I am not looking forward to it.
  
ANXIETY/DEPRESSION/PANIC ATTACKS
My depression hasn't been good to be honest, I've had more down days than up days this month. My GP has upped my Sertraline to 200mg and have referred me to an Psychiatrist. My GP explained that because he has upped my dose of Antidepressants and I haven't heard back from Therapy than he feels that me being seen by an Psychiatrist will be more helpful than waiting for an Therapist appointment. I told him how the more pain I get with both of my illnesses that the more depressed I feel and as I can't control any of my illnesses/they wont get cured that I feel like I need to learn how to control my depression ASAP. As for my Anxiety that is always there in the back on my mind in some way or another. Whether if I am not in an anxious place, I will always feel on edge. I wrote a post HERE about fear and Guilt of an Chronic Illness and in this post I explained what fear I have lately and part of that is feeling anxious. As for my Panic Attacks, I haven't really been in any panicky environment to make me panic lately. I went to Essex at the beginning of August and obviously I've mentioned how I used to have a fear of trains ect and that is where my panic attacks started but I have gotten over the fear but I still do panic as I think it would be totally impossible of me to stop panicking while I am on the tube/train. My Brother picked me up on the way there and on the way back I got the tube and train back and luckily the tube was there quick and so was the train so I didn't have any time to panic.

OTHER
I wrote a post HERE about my Eye dramas over the past few weeks so read that if you want to know what happened. I am still on eye drops and to be honest the eye pain has gone but both of my eyes are still so red. The eye Doctor did explain how he was worried as people with Colitis/Ankylosing Spondylitis do get bad eyes so he did say he was going to send me to an specialist so I guess I shall have to wait for that appointment letter to come through. That's pretty much it for my health this month and I have no more appointments left for this month. In September I have Dietician which is to do with my Colitis as I am struggling with what to eat lately and then I have my Monthly GP app middle of the month.

I shall keep you all posted on how I get on with the Steroids for my Colitis which I haven't got yet as the chemist had to order them in. Also touch wood my eyes start to get better.

Love Katie xx  

Health : Dealing with negative comments

As you can tell my the title this is about my personal experiences on having people being extreamly negative towards me to do with my condition. 

I've wrote a post here explaining what my condition is but long story short I have ankylosing spondylitis a type of arthritis. I totally understand it's hard for my close ones and people around me to get what my conditions means and what it stops me doing and how I react during a flare up ect but it's obviously natural for some family members to be totally negative and blind by the truth. Lucky enough my Mother, brother & Bethany totally understand and really their opinion is all I need as they are the ones who support me the most and who I love forever but without going into who and names ect it's hard to deal with people who basically class you lazy for having a condition. I've spent many times explaining to family what this means for my now and my future but yet certain ones don't seem to listen. It's very frustrating as my condition is out of my hands there is nothing I can do cure it or make it go away and trust me if there was I would be trying my hardest to get rid of it. I get comments like " you take too many medication", " just exercise more", " your young it will go " and " when will you go and get a proper job"!!! Those comments have been told to me since I was diagnosed in May 2014 and each time they are said I still get upset and hurt by them which is stupid as I shouldn't let it get to me but it does. 

I've tried my very hardest since having this condition to make myself pain free at possible but as time goes on Im experiencing more and more pain. It gets me down, it makes me have sleepless nights worrying and it makes me cry at the feeling that I'm failing at life but I know I have no control of this condition. Although it's been nearly a year since I've been suffering but I'm in very early stages and in that year I've been trying a lot of medication which some haven't worked and some I found out I'm allergic to and ended up in hospital due to vomiting blood from the reaction but the negative people seem to think I will get the right medication soon and then be totally painfree and can be "normal" in their eyes. 

If these people wasn't family members it honestly wouldn't bother me but I have to see these people on a weekly basis and I love these people which hurts even more. I hope over time they can be more understanding as my condition ain't going to vanish and in time I will need their support. But as I've said I've got my mother, brother and Bethany who understands, gets it and give me 100% support. Bethany is the person I text during the night when I'm upset and in pain and she totally calms me down even though it's over the phone she means alot of me. My mother is here 24/7 and I admit sometime she can be not so  understanding but I know she doesn't mean it as at the moment she is going through medical problems herself so we are each other's rocks and support but also stuck in the same house 24/7 so natually it can be draining and hard but we are both thankful for each other. I'm sure she feels the same... Well she better haha... I know she is reading this lol!!! 

Have any of you had similar experience and have any tips on how to deal with these negitive comments? Leave a comment or email me as it would be good to hear other people's stories reguarding this subject. Thanks for reading :) 

Love Katie x