Feeling alone By Katie

 

 

 

 

 

 

Feeling alone

 

 

At the weekend my health messed up a family fun day Saturday which made me rather sad and couldn't help but feel alone! 

When you have chronic illness you feel so alone. When I say alone I mean because I have no one in my family that suffers with a chronic illness similar to mine so it's genuinely hard to talk out loud about my health as they do not understand. Alone because most family birthdays meals I cannot attend because I'm either in a bad flare or can't eat anything on the menu so I'm left at home alone and I end up feeling so isolated. The one thing that really upsets me about missing family occasions is when I get certain family members saying that I'm choosing to not go out and that I don't want to socialise which couldn't be further from the truth. Of course I want to go out, attend all family meals or events and socialise but I've realised that you HAVE to put yourself and your health first. I've spent many times sitting in a restaurant putting on a totally different mask and acting fine when in reality I'm sitting there with stomach cramps, my joints are in crippling pain and my eyes are wanting to close from severe fatigue. The smile I put on in those situations is totally fake. How can I smile when I'm in so much pain. Sometimes putting on an mask and a fake smile doesn't  work in my favour! Unfortunately It makes some of my family members think that I am absolutely fine and that I am lying about being ill. It leaves me thinking what is the lesser of two evils? Grinning and bearing the family meal in crippling pain or putting myself first and not going and facing the criticism of some not so understanding family members.

 

The weekend just gone, I planned to go to Battersea Old Windsor Fun day on the Saturday with Beth, my nieces and my brother, we planned this ages ago and we was all looking forward to it. The evening before I got ready to have an early night then all of a sudden my colitis really flared up big time to the point where I was on the toilet from 10pm until 7.40am so I was incredibly exhausted from just running back and forward to the bathroom. At 8am I thought lets get an hours sleep so I can have some energy for the day out but soon as I closed my eyes, my bowel had other ideas meaning I had no other choice than to cancel the plans and stay in bed instead. I was so exhausted and the toilet trips continued till Saturday evening and I was home alone so I felt even worse and more alone. 

Luckily I have my three dogs who drive me mental but they follow me to the toilet, cuddle me on the sofa, always by my side in bed and make me laugh. I am so glad that I live with my Mother, something I thought at 24 years old that I wouldn't say but honestly I couldn't be without her. 

I really hope that my health starts to improve as I hate missing out on all these family events, I will be sure to keep you all update on my health and my story.

until next time

Katie x