I've wrote a post here explaining what my condition is but long story short I have ankylosing spondylitis a type of arthritis. I totally understand it's hard for my close ones and people around me to get what my conditions means and what it stops me doing and how I react during a flare up ect but it's obviously natural for some family members to be totally negative and blind by the truth. Lucky enough my Mother, brother & Bethany totally understand and really their opinion is all I need as they are the ones who support me the most and who I love forever but without going into who and names ect it's hard to deal with people who basically class you lazy for having a condition. I've spent many times explaining to family what this means for my now and my future but yet certain ones don't seem to listen. It's very frustrating as my condition is out of my hands there is nothing I can do cure it or make it go away and trust me if there was I would be trying my hardest to get rid of it. I get comments like " you take too many medication", " just exercise more", " your young it will go " and " when will you go and get a proper job"!!! Those comments have been told to me since I was diagnosed in May 2014 and each time they are said I still get upset and hurt by them which is stupid as I shouldn't let it get to me but it does.
I've tried my very hardest since having this condition to make myself pain free at possible but as time goes on Im experiencing more and more pain. It gets me down, it makes me have sleepless nights worrying and it makes me cry at the feeling that I'm failing at life but I know I have no control of this condition. Although it's been nearly a year since I've been suffering but I'm in very early stages and in that year I've been trying a lot of medication which some haven't worked and some I found out I'm allergic to and ended up in hospital due to vomiting blood from the reaction but the negative people seem to think I will get the right medication soon and then be totally painfree and can be "normal" in their eyes.
If these people wasn't family members it honestly wouldn't bother me but I have to see these people on a weekly basis and I love these people which hurts even more. I hope over time they can be more understanding as my condition ain't going to vanish and in time I will need their support. But as I've said I've got my mother, brother and Bethany who understands, gets it and give me 100% support. Bethany is the person I text during the night when I'm upset and in pain and she totally calms me down even though it's over the phone she means alot of me. My mother is here 24/7 and I admit sometime she can be not so understanding but I know she doesn't mean it as at the moment she is going through medical problems herself so we are each other's rocks and support but also stuck in the same house 24/7 so natually it can be draining and hard but we are both thankful for each other. I'm sure she feels the same... Well she better haha... I know she is reading this lol!!!
Have any of you had similar experience and have any tips on how to deal with these negitive comments? Leave a comment or email me as it would be good to hear other people's stories reguarding this subject. Thanks for reading :)
Love Katie x
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