Oh god!! I have no idea where to even start!! I haven't written a blog post since late last year due to health problems and I have totally lost the blogging vibe.
I used to love sitting down either on the sofa or in bed writing about my health and lifestyle which also helped with my Depression and Anxiety because just to write and express what is on your mind feels so bloody good. So when I had to stop blogging it wasn't a nice feeling. I didn't bother on our Instagram or twitter, I just abandoned the blog and the whole social media side of things. At the time Beth was moving down nearer to me so I was just happy at the fact that I am able to see my Nieces whenever. Then there is the illnesses!!
As you all know I have Ankylosing Spondylitis and Ulcerative Colitis which I have done many, many posts about and looking back I was somehow "managing" with my symptoms and side effects from medication. With the help of mediation and LOTS OF PAINRELIEF and hot water bottles, I could sit down and happily open the laptop but now things are abit different to say the least.
Since late last year, I have NOT been "managing" and life has became very different. If I could only use one word to describe it would be "Exhaustion". Exhaustion from every little task I do, Exhaustion from stupid simple things such as shower, wash my hair and even washing my face and also from taking the stupid amount of medication I have to take and just Exhaustion of being awake. End of last year I started getting pain in my thighs then my hips then my hands and now my knees. My mobility is poor and there are times where getting out of bed is impossible. Well I say "times" but I mean mostly every day. I struggle to sleep, I get numbness and tingling in most joints, my thighs feel swollen and throb with pain and now my knees which is the newest of symptoms. I wake up and from head to toe I am stiff. Having to rely on Morphine based patches to basically live is so depressing and yet I STILL get pathetic comments from certain people. I have had physio which made zero difference I mean does it ever work? Especially with such conditions as I have, its going to take more than a few leg stretches to cure. So now I await to hear from various of specialist. The main condition this is all being linked to which I am being tested for is Fibromyalgia. Of course I have done lots of googling (who doesn't) and have read up on this condition among other conditions. From reading I have learnt that is it hard to actually be diagnosed with Fibromyalgia and have had few people tell me they was being tested for a year just to get the diagnoses so that bit scares me. I don't want it being dragged out that long, I just want to get sorted and start feeling better, I'm so exhausted from medical tests and hospitals.
There is so much I want to write about but I can't get most out. That is down to Brain Fog, I will at some point do a post about this as it is totally life changing. My mind is mushed! and also down to the silly side effects of my medication. I will get Beth to proof read this because I struggle to make sense sometimes. I have given Bethany my laptop as it was no use to me anymore so at least she is getting use out of it but I plan to write posts on my iPhone on the blogger app or on my notes and then sending them to Beth as she is a lot more clever than me and will pick out all the spelling mistakes and the sentences that don't make any sense haha. Bethany sort of runs the blog by herself for the moment and also she runs the twitter, I run the Instagram for the blog as it still gives me a little input into the blog without it effecting my health. I have set up an new Twitter for myself so follow it if you want to hear me moaning about life or hospitals haha my twitter is @KatieAmyPricex but you can still reach me on the blog Twitter @Essextowindsor were I pop up from time to time, and Beth lets me know when there are messages for me.
I have enjoyed writing this actually but my legs are in pain, my patch is due for a change 30 mins ago haha. I am currently at Bethany's while she is at Sally's hair supplies getting some new scissors so one is on the laptop on the sofa while Bella has her nap and Ava is watching YouTube on the TV haha. I might try and get another post written if my body lets me. Thank you for anyone who has read this... and got to the end of this post and apologises if I don't makes sense!! Hope to see you all soon :)
Love Katie :)
I used to love sitting down either on the sofa or in bed writing about my health and lifestyle which also helped with my Depression and Anxiety because just to write and express what is on your mind feels so bloody good. So when I had to stop blogging it wasn't a nice feeling. I didn't bother on our Instagram or twitter, I just abandoned the blog and the whole social media side of things. At the time Beth was moving down nearer to me so I was just happy at the fact that I am able to see my Nieces whenever. Then there is the illnesses!!
As you all know I have Ankylosing Spondylitis and Ulcerative Colitis which I have done many, many posts about and looking back I was somehow "managing" with my symptoms and side effects from medication. With the help of mediation and LOTS OF PAINRELIEF and hot water bottles, I could sit down and happily open the laptop but now things are abit different to say the least.
Since late last year, I have NOT been "managing" and life has became very different. If I could only use one word to describe it would be "Exhaustion". Exhaustion from every little task I do, Exhaustion from stupid simple things such as shower, wash my hair and even washing my face and also from taking the stupid amount of medication I have to take and just Exhaustion of being awake. End of last year I started getting pain in my thighs then my hips then my hands and now my knees. My mobility is poor and there are times where getting out of bed is impossible. Well I say "times" but I mean mostly every day. I struggle to sleep, I get numbness and tingling in most joints, my thighs feel swollen and throb with pain and now my knees which is the newest of symptoms. I wake up and from head to toe I am stiff. Having to rely on Morphine based patches to basically live is so depressing and yet I STILL get pathetic comments from certain people. I have had physio which made zero difference I mean does it ever work? Especially with such conditions as I have, its going to take more than a few leg stretches to cure. So now I await to hear from various of specialist. The main condition this is all being linked to which I am being tested for is Fibromyalgia. Of course I have done lots of googling (who doesn't) and have read up on this condition among other conditions. From reading I have learnt that is it hard to actually be diagnosed with Fibromyalgia and have had few people tell me they was being tested for a year just to get the diagnoses so that bit scares me. I don't want it being dragged out that long, I just want to get sorted and start feeling better, I'm so exhausted from medical tests and hospitals.
There is so much I want to write about but I can't get most out. That is down to Brain Fog, I will at some point do a post about this as it is totally life changing. My mind is mushed! and also down to the silly side effects of my medication. I will get Beth to proof read this because I struggle to make sense sometimes. I have given Bethany my laptop as it was no use to me anymore so at least she is getting use out of it but I plan to write posts on my iPhone on the blogger app or on my notes and then sending them to Beth as she is a lot more clever than me and will pick out all the spelling mistakes and the sentences that don't make any sense haha. Bethany sort of runs the blog by herself for the moment and also she runs the twitter, I run the Instagram for the blog as it still gives me a little input into the blog without it effecting my health. I have set up an new Twitter for myself so follow it if you want to hear me moaning about life or hospitals haha my twitter is @KatieAmyPricex but you can still reach me on the blog Twitter @Essextowindsor were I pop up from time to time, and Beth lets me know when there are messages for me.
I have enjoyed writing this actually but my legs are in pain, my patch is due for a change 30 mins ago haha. I am currently at Bethany's while she is at Sally's hair supplies getting some new scissors so one is on the laptop on the sofa while Bella has her nap and Ava is watching YouTube on the TV haha. I might try and get another post written if my body lets me. Thank you for anyone who has read this... and got to the end of this post and apologises if I don't makes sense!! Hope to see you all soon :)
Love Katie :)
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