Chronic Health & OCD

So I’ve been wanting to do a blog series for ages now about cleaning while having chronic health. I also have OCD which had way before becoming ill so it was a huge shock for me when I started to notice how certain housework/chores became rather difficult and sometimes impossible. 

I love cleaning. I always have and to be I use it as my therapy. Some people go retail therapy or cooking or exercise but for me it’s always been cleaning,tidying, clearing and being organised. I love seeing the before and after of how simply changes can make a massive difference. And storage!!! Storage is my best friend andI HATE having items in my draws without being in some sort of box or draw divider. Every month I always sort through each of my chest of draws, clean them and make sure to either chuck or Charity shop stuff I no longer have use for.

Safe to say I love clearing, cleaning and organisation but it’s rather hard when you have a disability. I’m lucky that I’m still able to do most housework and I have ways of making sure I can still manage them but having OCD thrown in the mix makes things so frustrating. My mind is telling me I have to clean or do something but my body is refusing and physically can’t. My illnesses has already taken so much away from me and has dramatically changed my life but I will not let it stop me from doing the normal day to day chores. I’ve made some changes and adapted which I think I have the right balance at the moment in order for me to be in less pain as possible while continuing to do the general housework. Obviously even with the changes I’ve made I still have days where the pain is too bad to do anything.  I thought I’d share some simple changes and tricks/tips on how I still do the normal chores with a disability. And how I try and control my OCD while having a bad pain day. I now do things differently which to some people might sound stupid but in order to still keep on top of the house I don’t care if I look or sound stupid. Not only is cleaning obviously good and I 100% go by the saying “ tiny house tiny mind” but I use it as a distraction and almost as a escape from the agonising pain I’m in 24/7. 

My next blog post shall be the simple changes I’ve made and the silly ways on how I still manage to cook/clean/tidy and organise with chronic health. I write all my blogpost via my phone as I don’t have my laptop as I hardly used it so if the layout, pictures or words are not up to scratch then I do apologise. I’m going to try and do at least one blogpost per week which I think is doable otherwise if I give myself a few a week I know it’s not possible. I do miss blogging and I think it must be at least two years since myself or Beth blogged properly but so much has happened to us both since we last blogged so our posts might be slightly different. I just thought I’d do a quick post to explain on why there will be regular posts coming soon and what they’re about ect. 

Next blog post shall be in a few days :) 

( I have about 10 posts half written that because of brain fog never get finished) haha..  I have been using the blog Instagram since last September now & do regular posts and I’m slightly addicted to doing daily stories haha.. so please do follow us on Instagram on “Essextowindsor”

Love Katie xx 

Katies Come back ....Sort of

Oh god!! I have no idea where to even start!! I haven't written a blog post since late last year due to health problems and I have totally lost the blogging vibe.

I used to love sitting down either on the sofa or in bed writing about my health and lifestyle which also helped with my Depression and Anxiety because just to write and express what is on your mind feels so bloody good. So when I had to stop blogging it wasn't a nice feeling. I didn't bother on our Instagram or twitter, I just abandoned the blog and the whole social media side of things. At the time Beth was moving down nearer to me so I was just happy at the fact that I am able to see my Nieces whenever. Then there is the illnesses!! 

As you all know I have Ankylosing Spondylitis and Ulcerative Colitis which I have done many, many posts about and looking back I was somehow "managing" with my symptoms and side effects from medication. With the help of mediation and LOTS OF PAINRELIEF and hot water bottles, I could sit down and happily open the laptop but now things are abit different to say the least.

Since late last year, I have NOT been "managing" and life has became very different. If I could only use one word to describe it would be "Exhaustion". Exhaustion from every little task I do, Exhaustion from stupid simple things such as shower, wash my hair and even washing my face and also from taking the stupid amount of medication I have to take and just Exhaustion of being awake. End of last year I started getting pain in my thighs then my hips then my hands and now my knees. My mobility is poor and there are times where getting out of bed is impossible. Well I say "times" but I mean mostly every day. I struggle to sleep, I get numbness and tingling in most joints, my thighs feel swollen and throb with pain and now my knees which is the newest of symptoms. I wake up and from head to toe I am stiff. Having to rely on Morphine based patches to basically live is so depressing and yet I STILL get pathetic comments from certain people. I have had physio which made zero difference I mean  does it ever work? Especially with such conditions as I have, its going to take more than a few leg stretches to cure. So now I await to hear from various of specialist. The main condition this is all being linked to which I am being tested for is Fibromyalgia. Of course I have done lots of googling (who doesn't) and have read up on this condition among other conditions. From reading I have learnt that is it hard to actually be diagnosed with Fibromyalgia and have had few people tell me they was being tested for a year just to get the diagnoses so that bit scares me. I don't want it being dragged out that long, I just want to get sorted and start feeling better, I'm so exhausted from medical tests and hospitals.  

There is so much I want to write about but I can't get most out. That is down to Brain Fog, I will at some point do a post about this as it is totally life changing. My mind is mushed! and also down to the silly side effects of my medication. I will get Beth to proof read this because I struggle to make sense sometimes. I have given Bethany my laptop as it was no use to me anymore so at least she is getting use out of it but I plan to write posts on my iPhone on the blogger app or on my notes and then sending them to Beth as she is a lot more clever than me and will pick out all the spelling mistakes and the sentences that don't make any sense haha. Bethany sort of runs the blog by herself for the moment and also she runs the twitter, I run the Instagram for the blog as it still gives me a little input into the blog without it effecting my health. I have set up an new Twitter for myself so follow it if you want to hear me moaning about life or hospitals haha my twitter is @KatieAmyPricex but you can still reach me on the blog Twitter @Essextowindsor were I pop up from time to time, and Beth lets me know when there are messages for me.

I have enjoyed writing this actually but my legs are in pain, my patch is due for a change 30 mins ago haha. I am currently at Bethany's while she is at Sally's hair supplies getting some new scissors so one is on the laptop on the sofa while Bella has her nap and Ava is watching YouTube on the TV haha. I might try and get another post written if my body lets me. Thank you for anyone who has read this... and got to the end of this post and apologises if I don't makes sense!! Hope to see you all soon :)


Love Katie :)