CCUK/Endoscopy Tour

Sooooo this is the first blog post I have done in a very very long time!! What better way to start blogging again by writing about something close to my heart..

On Sunday I went to my first ever Crohns and Colitis Meet up at the Endoscopy Clinic At Royal Berkshire Hospital in Reading and it was literally so amazing to meet and talk to people who suffer with IBD. This was my first meet at all so I was nervous abit and to make things worse Im flaring at the moment. This was rather different from a general "meet" as it was a chance for Friends and family of members of Crohns and Colitis Berkshire to see behind the scene and learn more about what us IBD sufferers have to deal with when we enter in Endoscopy area. I brought my Mother and Stepdad with me as I thought it would be a good idea to get them involved more and in hope that they can try to understand what I go through. I am glad I took them as they are two of my closest people in my life and I would love it if my closest ones understood and knew more about IBD from the endoscopy consultant.  

So we got there about 10am ish and we sat down with a cuppa in the reception area of the Endoscopy unit. Well I say sit down but what I really meant is that I ran straight to the toilet because Colitis doesn't like to behave well at the moment lol. We all had a cuppa and biscuits and had a chat/got to know each other for about 10 minutes or so. Then Professor Jon Simmons started the tour of the endoscopy clinic and literally I was so interested and amazed. He explained what happens from the minute you step into the reception to the minute you leave. He started by showing us the waiting areas which is separate for male and females, once you are undress you put all your clothing and items in a big "shopping basket"...you know like the baskets on wheels they have at some shops, well it was exactly the same as that which they take it with you all the way to recovery. Also in that area he shown us where you have the enema which is in a room attached to a toilet. Then onto the exciting area!!!! The Endoscopy operation rooms. Jon shown us everything from the equipment, the biopsy equipment, all the machines, the gas and air ect and he also explained all the different type of sedation which was very interesting. We asked him some questions then he switch on the machine and we all had a hold of the endoscope itself, took biopsy (with paper) and we was all in amazed haha. Then off we went to the recovery area which was male and female separate and explained how it works ect. Now this part was the best...the cleaning room!! So once the endoscopy is finished the nurse will take the dirty endoscope plus all the equipment to the cleaning room which was literally so interesting. On one side was full on sinks where they clean the equipment first then on the other side was the big machine which looked like massive washing machines haha... they put the equipment in these machine which is disinfected. Once the cleaning progress is all finished its comes out in a separate room so basically the dirty ones NEVER mix with the cleans ones. Then we went to see all the other operations rooms which one had a X-ray in and lastly we went to the room where you go and sit down once you have recovered from the sedation and all your obs are fine. That room is full of comfy sofas, a area for hot drinks and toaster and a little room joined to it which is for when they have the report of the endoscopy and the nurse goes through any questions you have ect and then you wait til you are picked up or drive home if you just have gas and air. 

We stayed in that room for ages asking Professor Jon Simmons lots of questions, we had lots of debates about the NHS and a general chat about life with IBD.  We was there for a good few hours and even my Mother and Stepdad learnt so much and got stuck in with asking questions. I literally felt alot better after talking to people who suffer the same as me as I finally was talking to people who know exactly how I feel. To be honest I was more happy that my Mother and Stepdad came and joined in because they obviously do not have IBD so its hard for them to understand me at times and sometimes they both have been judgmental in the past which I don't blame them for because unless you have IBD, its really difficult to understand. As I said at the start of this post that this was my first ever meet up to do with Crohns and Colitis so I was very scared but after it finished I felt more confident and excited to attend other meet ups. 

I learnt ALOT and feel alot less nervous now for when I have another Colonoscopy/Sigmoidoscopy. I am not under Reading Hospital so it was all new to me but after speaking to the Jon Simmons its made me ever more sure to be referred there. I am currently under Wexham Park hospital and ever since I was diagnosed in 2015 I have never had any progress with symptoms and they still won't try me on any other medication. So I think its about time to get referred to a new IBD specialist with a good IBD nurse support team and in hope they start me on new treatment and finger crossed I start to feel better. 

Thank you to anyone who has stayed this far and read this haha. Myself and Beth haven't been blogging properly for ages. Life got in the way and we put this blog in the back of our mind. We literally loved writing and reading other blogs and we both said its a form of therapy for us so we promise to try and get this blog back to how it was. 

Love Katie 
xx  

Our Time At Bucklebury Farm

 

Review For Bucklebury Farm Park

 

 

 

This time last week we were gearing up for an spectacular Sunday at Bucklebury Farm Park. We were going to submerge ourselves into farm antics getting up close and personal with all the farmyard animals. Having children that are keen animal lovers I knew that they were going to have the time of their lives. Like everyone before a day out we had to prepare, though we thought sod it to preparing food we don't do it very often so we was going to have the full shebang and eat there too. However we made sure we had change in our pockets for a car parking fee as we had been in the no money for car parking situation too many times. We had to have double the change as going on this outing was myself, Tommy, the two girls, Katie and my father in law so obviously we would need to take two cars, corr parking was going to be tight. Would there be enough spaces? 

You know what I hate? I hate farms that are like in the centre of everything, you know right next to town, I mean come on could you get more unrealistic and fake made farm than that? That's what I was gearing up for  in all honestly, but hey ho it was for my girls who cares what I wanted. We set off for the twenty minuet journey, this was the most bizarre twenty minuet journey of my life! as we were getting further and further into our journey we started getting surrounded buy more and more green, you would have thought we had travelled hours, that's what made it so surreal, how could 10 minuets ago we be in a busy city but now we are simply in the middle of nowhere. I thought I was walking into an emmerdale scene. It was beautiful. We pulled into the farm and came across a good sized car park, it was busy but had plenty of spaces, to my absolute joy the car parking was free! Typical the time we come somewhere car park prepared we don't need to,  I weren't complaining though!

Upon entering the farm I felt as though I needed my wellies on, not because it was muddy or any thing (though can imagine on a wet day it would be wise, its a farm what do expect!) but because it felt like I was on a private farm, I was expecting Zak Dingle to pop round the corner at anytime. The first thing to greet us where chickens! followed by a donkey, a great start before we paid. Getting further into the farm it was clear this was a proper working farm, stocking produce as well. When going to pay you have to walk through the little farm shop. The shop being smaller that expected but to be honest I later realised they don't really need one! It is clear to see that the place is more fun than all about the merchandise like usual places like this. The only problem I would say is its a bit awkward paying for tickets in the shop as it distracts the children a tad. We were lucky enough for my father in law to be treating us, I did feel guilty as looking at the place I thought it was going to cost him close to £100, for four adults and two children that's what to expect these days, delightfully it only cost him £40ish for us all. I still felt guilty as I always do when someone else paid but I didn't feel as bad.

The farm is very easy to follow, a good natural pathway that takes you from animal to animal ensuring you don't miss any! I don't know about you but I hate panicking that I'm going to miss things and constantly having to check the map to make sure I have seen it all. We had earlier bough some animal food (at reception) that costs around £0.60, bargain! This food can be used to feed all animals apart from the ponies so this was a result. The girls had a lot of fun sticking their hands through the fence, feeding the goats in particular. I know they do warn that all animals have the tendency to bite ect and of course are unpredictable, but all the animals we come across where very friendly. We went through the animal part in usain bolt style. Quick but enjoyable. It is obviously a bright idea to ensure you wash your hands after contact with the animals, but don't worry there are taps, soap and hand towels available just by the animals. We was earlier providde with a timetable of things including, egg collecting, tractor ride, animal petting ect I looked and thought I cant wait to do all these. That was until Ava found the park.

Park. You may think how standard. No. It was farm set and not typical. There were swings climbing tractors ect. Then a favourite with the kids, A wooden castle! The children would go inside and either go all the way to the top or stop half way and go down the fireman's polls. This kept Ava entertained for ages! Next to it was a sand pit which I noticed was keeping a lot of kids happy, Though Ava wanted to go on the indoor slides before lunch instead. What great fun. There where two slides in which you have to use the sac provided and two drop slides at two different heights. It looked so much fun that I wanted to go on them myself.

Lunch time!! Two choices. A posh burger van, which seemed a bit pricey, but the food did look worth it or the café, a rather posh one at that. I did think oh gosh, but actually they had affordable food on there. The sandwiches costing between £4.00 - £5.00 and the baguettes between £5.00 - £6.00 with a range of fillings to suit all. May I take the time to say how amazing the kids chicken nuggets and chips are! The portion size was plenty I could have had it, homemade and they were delicious!. They also provide the adults as kids portion with 20% off the price. All the food was fresh and well worth the £40. Yes that's right £40 for all 6 of us including drinks!. Though  if you want an after dinner coffee I wouldn't recommend it at £2 for a tiny cup I would stick to soft beverages.

We finished lunch in time for my favourite bit, the tractor ride! I don't know why I was so excited, I wasn't expecting anything special just a ride round the farm, but it just shouted fun to me. That's when the surprise really happened. The tractor ride took us into a who new bit of the farm, big green beautiful fields with stunning views and deer sitting in the middle. To my delight that was were the tractor was taking us. The tractor man who by the was very knowledgeable and taught us a lot (I was very impressed) Gave us buckets of food to feed the deer with. The deer came up close to the tractor and where such lovely animals. It was an experience I would love to have again.

What could we do next, well, that's where I get on to the range of activities we did next. Provided was a big bouncy pillow thing, I don't know what I was but it was a hell of a lot of fun, little peddle go karts and some bikes in a separate area for the little ones, two goals and footballs provided and a play bus, which by the way was brilliant, a bus converted into a soft play. We had the best afternoon playing on all these things. Yes I did say we us adults to joined in. There was also a tire swing, zip wire and assault course. To be honest I thought you would have to pay extra for all these bits but you didn't which makes it even more perfect. I honestly felt like I had relived my childhood, I didn't want the day to end. No I didn't do as much on the timetable as I would of liked to but that's for another day, I was too busy having fun elsewhere. I also noticed an area in which you can take picnics if you don't wish to buy food. After a quick trip to the shop for Ava it was time for us to sadly set off home with two knackered children and rather worn out adults!

If your looking for some affordable fun this summer then I would defiantly recommend Bucklebury Farm park. Its got beautiful scenery, friendly staff whom I cant fault and fun for everyone. I give it a thumbs up and five stars. Bucklebury Farm I look forward to seeing you again soon.

Until next time our lovely readers

LotsOfLove
Beth...xxx

 

Where We Have Been

So we haven't been blogging a lot over the past few months which we have valid reasons for but hopefully soon we should at least have one post up per week.

Ava & Bella loving their new home :)

Where we have been?
Me (Katie) well my illnesses haven't been too good lately to the point where I haven't opened up my laptop in ages. My Colitis flare up has no sign of settling down and I am still waiting for an appointment with the Gastro ward. The fatigue is getting the better of me. My painkillers dose has been upped which obviously comes with more side effects so I am like a zombie pretty much most of the day.

Bethany .. welll things have finally gone to plan for her and my Brother and they now are living in Berkshire so we live in the same county finally and their place is about 20 minutes away. It all happened so fast that they had just under two weeks to buy everything for the flat and pack everything up. So on the 19th October Beth, my Brother and most of both of our families all came together to help move in. For the past year they have had bad luck when it comes to finding a place to rent so it was all hush hush when they got the go ahead to move as they didn't want to temp fate.

So things have been abit manic lately and this weekend will be even more manic as on Saturday Beth and Tom are having a little housewarming party/get together, Sunday myself, Beth, Tommy and the girls are off to Harry potter Tour and then on Monday it is Bethany's 22nd Birthday and as Tommy will be working, I am staying the night before so I can spend the day with her and go for lunch and obviously a Costa. Once this weekend is over then I will hopefully well I WILL be seeing Beth least once a week and hopefully most weekends. I shall take my laptop over to hers and as she lives next to Costa we shall be having a blogging costa date most weeks haha.

I have energy for the first time today and I guess the medication and coffee is to thank for that. So I am going to try and write a few posts so I can put them up next week :) Hope you are all well :)

Love Katie xx