Toilet Thoughts

Hello readers.. 

I'm currently writing this as I'm sat on the toilet and I'm sure most people wouldn't want to know that but in reality this is my life. I have Ulcerative Colitis which if you have been following our blog since we started then you would know. If you haven't read our blog and don't know or heard of Ulcerative Colitis is then it's an Irritable Bowel Disease (NOT IBS) and this horrible disease means I attend the toilet basically 95% of the day. I get very sore joints because of this and also terrible fatigue so you can imagine sitting on the toilet isn't enjoyable.

I wanted to write this post because I swear some people think that I'm even making it up or that I enjoy suffering from Colitis! It's exhausted, painful & frustrating. I never have a proper goodnight sleep because for some reason my Bowel is more awake at night time. I never get to watch full programme as run back and forward to the bathroom. It's not fun or enjoyable having to sit on the toilet and for normal people when they go for a toilet they are not in pain but I am in pain. Everyone I open my bowel it is absolutely agony and I cry because of the pain. 

I sit on the toilet and watch people snapchats or insta stories and see people out having fun or not having to worry about to what to eat and it's hard to watch.. and I do feel about jealous of them. Then I go on Facebook and read people statues about their fun evenings and it makes me sad and angry. I look back and miss the old me. The old me who used to spend my evenings going out, drinking, eating whatever I wanted, was abled to have a goodnight sleep and literally having no care in the world. 

So when people say that I have an easy life being housebound, stuck on the toilet in pain and never having a goodnight sleep.... "easy" isn't the word I'd call it. I didn't choose to have this disease and I wouldn't wish this on anyone. I'd absolutely chose to be working, doing normal adult things and not having to be in pain over this any day!! It's hard to be positive when I'm stuck on the toilet, it's hard to be happy and not dwell on the past. But this IS my life and all I wish is for my health to be better and to gain my life back again. So yeah this isn't enjoying or fun and if anyone says it is then come and be in my shoes for a day and you'll soon realise how "fun" this really is!!! 

Love Katie xx

Katies Health: Being On Steroids

For the past few weeks I was on Steroids for my Colitis which I have written about HERE. In March when I was diagnosed with Colitis, I never thought I would be on steroids any time soon let alone this year. I always knew about Steroids but didn't really know the side effects or that there was different ways of using them. I just thought it was a tablet but the one I was prescribed is something totally different.

So the steroid my consultant prescribed me was called Predfoam Enema which you can read about HERE if you want to understand more about what theses one do but without going into too much information, I had to basically place into my rectum!!! It wasn't a nice experience and it took be a few days to get the idea of it and still don't feel comfortable doing it. The first week of being on these I was in Essex so it took my mind being on this to be honest. I was told to do it the same time each day but I just done it whenever I could. I was only given a few weeks worth of the steroids and then got to go back to my Gastro consultant  to see what the next step of my treatment is. So far I haven't noticed any difference and my symptoms have got worse. The past two weeks I haven't been out of the house much apart from going to the Doctors as I feel so anxious about flaring up in public. I have now been put on a low residue diet which I have only been following for the past week and it has helped a little bit already so I will continue to follow it and will do a blog post in a few weeks to see if it has made any difference.

I am still on Asacol which isn't helping much but my consultant wants me to carry on with them until my next check up which should be soon. Hopefully will get my gastro appointment letter through soon as I just want my symptoms to settle down abit.

Anyone else with IBD reading this been on the same steroids? What is your thoughts on them? Let me know :)

Love Katie x

A Painful Operation & Recovery

Hello everyone :) So yesterday I had my operation and it actually hurt a lot more than I thought. I was sedated so not totally knocked out but I felt EVERYTHING to the point where they was going to stop but luckily I grabbed the nurse hand, breathed in and out a lot and closed my eyes and it was over. I never want to be sedated every again! It was awful, I've always been knocked out totally for all of my ops so I didn't know what to expect. I literally felt like I had someone stabbing my stomach while kicking it at the same time, thank god it didn't take long otherwise I defiantly would of made them stop. Seeing as the sedation didn't effect me I recovered in the ward so quick, I had tea and biscuits and got changed back into my clothes and was told to sit in the waiting room til the nurse calls me back to be discharged. 

It's only a day after but I'm feeling swollen, cramps and a very sore stomach. I haven't really eaten much proper food and sticking to light food and a lot of fluid at the mo. Compared to all my other operations in the past this one was meant to be the least painful and not so bad recovery but I feel like it's the worse. I think because I've had quite a lot operations for my age that whatever I have done it will just hurt anyways. I've ran out of all my medications but luckily my lovely mother is going to collect them otherwise I couldn't cope with the pain. Luckily I have the weekend and beginning of next week to rest and I hope I feel better soon as next Friday myself and Mother are going to stay in Essex for the weekend at Bethany's yay!! 

I had some biopsies taken yesterday during the op aswel (this op was to do with the bowel area without going into too much detail) so been told my GP will tell me the results in 3 weeks and also going back to see my surgeon in 4/6 weeks to discuss things more which I have no idea what about. I'm all over the place lately with my health to be honest. I'm not feeling myself lately, you know when you get to that point when you're so fed up that you blank out so much stuff. Il shall do an health update next month and keep you all up to date with the results of this op. Let's hope this will is my first and last op of 2015!! Saying that I was told I wouldn't need a operation last year and in a space of 5 weeks I've had two so you can never trust what the doctors say haha!!! 

Love Katie xx