It's been over 5 months since I wrote this blog post HERE about dealing with negative comments. That post had so much amazing feedback on Facebook, twitter and emails and also the National Ankylosing Spondylitis Society Facebook shared the link to my post there and I had amazing comments. It is one of our most read post and I think the reason why is because its one of those things that chronic illnesses people get 99% of the time but yet no one really talks about it.
Since that post I have been diagnosed with Colitis which I have written about HERE. So I have had a whole new experience of different types of crap comments. It has been harder to deal with it this time to be honest as I think I have gotten used to the comments about my Back but with the Colitis it is all sort of new to me. I have all new symptoms, medications with side effects, have to watch what I eat and have canceled so many plans because of a flare up. I still get the "exercise and your back pain will be cured", "You're too young to have arthritis", "You don't need your medication", "Take Painkillers and your be fine" but now I have a whole new type of comments related to my Colitis such as "Just take your Asacol and eat whatever", "You're eating the wrong food", "It is just IBS", "It will just go away if you loose weight". It has only been a few months since I was Diagnosed with Colitis so I don't really know how it will be controlled and treated. I am on a trial medication and then I go back to see my consultant to see where I go from there.
There is one comment that I have even been told by a "Doctor" and family members ect.... Oh your Depression and Anxiety are the reason you have a bad back and bad stomach. I went to see a doctor at a Pain Management Clinic and I never felt so small and offended in my life. He said it all down to Depression but if he read hes notes properly he would of seen that I was not depression for the past 3 years and my depression has only come back at the start of this year because I'm finding it extremely hard to deal with illnesses ect so its made me very depressed. I'm very very lucky my GP is the best doctor I have ever seen, he is so understanding and makes me feel like he is generally worried and concerned. My GP made me realized that going back on Anti Depressants are going to help as I spent ages being against going back on them and since I have been on them, I have felt like I can cope better. He always books double appointment so He can go through all of my illnesses and make sure my medication is up to date and right ones ect. I truly don't think I would cope if I had another GP.
I'm finding it a lot harder to blog weekly as when I have a back and colitis flare up, I'm in agony and last thing I can do is sit on the comp and write. The NASS Facebook page is really helpful and also on Instagram there is lots of people suffering with chronic illnesses and it helps knowing that we are just normal people who post random pictures on Instagram ect. I've had someone say " Why are you on Facebook, twitter, Instagram and using your iPhone when you're sick" and I was like what you on about and they replied "Surely if you in pain you can't use your phone"... People like that are so uneducated and bloody rude who don't think before they open their mouths.
Having a blog with Bethany has really helped me cope with my illnesses and knowing I'm not the only one. If you have chronic illness please email, twitter, Instagram or comment on the post as I would love to speak and know all the tips and trick to ignore negative comments and rude people.
Love Katie x
Instagram - Twitter
Since that post I have been diagnosed with Colitis which I have written about HERE. So I have had a whole new experience of different types of crap comments. It has been harder to deal with it this time to be honest as I think I have gotten used to the comments about my Back but with the Colitis it is all sort of new to me. I have all new symptoms, medications with side effects, have to watch what I eat and have canceled so many plans because of a flare up. I still get the "exercise and your back pain will be cured", "You're too young to have arthritis", "You don't need your medication", "Take Painkillers and your be fine" but now I have a whole new type of comments related to my Colitis such as "Just take your Asacol and eat whatever", "You're eating the wrong food", "It is just IBS", "It will just go away if you loose weight". It has only been a few months since I was Diagnosed with Colitis so I don't really know how it will be controlled and treated. I am on a trial medication and then I go back to see my consultant to see where I go from there.
There is one comment that I have even been told by a "Doctor" and family members ect.... Oh your Depression and Anxiety are the reason you have a bad back and bad stomach. I went to see a doctor at a Pain Management Clinic and I never felt so small and offended in my life. He said it all down to Depression but if he read hes notes properly he would of seen that I was not depression for the past 3 years and my depression has only come back at the start of this year because I'm finding it extremely hard to deal with illnesses ect so its made me very depressed. I'm very very lucky my GP is the best doctor I have ever seen, he is so understanding and makes me feel like he is generally worried and concerned. My GP made me realized that going back on Anti Depressants are going to help as I spent ages being against going back on them and since I have been on them, I have felt like I can cope better. He always books double appointment so He can go through all of my illnesses and make sure my medication is up to date and right ones ect. I truly don't think I would cope if I had another GP.
I'm finding it a lot harder to blog weekly as when I have a back and colitis flare up, I'm in agony and last thing I can do is sit on the comp and write. The NASS Facebook page is really helpful and also on Instagram there is lots of people suffering with chronic illnesses and it helps knowing that we are just normal people who post random pictures on Instagram ect. I've had someone say " Why are you on Facebook, twitter, Instagram and using your iPhone when you're sick" and I was like what you on about and they replied "Surely if you in pain you can't use your phone"... People like that are so uneducated and bloody rude who don't think before they open their mouths.
Having a blog with Bethany has really helped me cope with my illnesses and knowing I'm not the only one. If you have chronic illness please email, twitter, Instagram or comment on the post as I would love to speak and know all the tips and trick to ignore negative comments and rude people.
Love Katie x
Instagram - Twitter
No comments:
Post a Comment