(Been two more surgeries since this picture)
Hello everyone :) as you can probably tell by the photo it’s Katie here. Me and Beth have soooo much to catch up on as a lot of life events have happened since we last was active on the blog. As from next week Beth shall have the laptop back and running so expect lots of blogpost about pregnancy and mum life but for now here is a post about my health.
When we used to update the blog a lot I done a series of “health Update” where I would share how my health was doing. I can’t remember the last time I done an update to be honest so I shall start with one of my conditions:
ULCERATIVE COLITIS-
I was put on Predinisolone for my Ulcerative Colitis and safe to say I totally regret it. I had put on a lot of weight, got awful side effects and to top it all off it didn’t make any difference to my bowel. My Gastro team were shocking and left me few months without any medication. It was June the month of Beth’s hen and we
dding. The hen party was a cocktail night & seeing as I haven’t drunk at all for a good few years it’s safe to say that alcohol didn’t agree with me. It put me in a instant flare where that evening I spent crying in the hotel bathroom with zero sleep, the cramps were insane and the thought of food made me feel sick. We got back home and my IBD nurse advised me to go to A&E so off I went had some bloods and morphine then to be told go home and wait for IBD team to ring as it was night time. I was exhausted I went home and rested for a few days then it was Beth’s wedding. I felt awful the original dress didn’t fit I had to order new one week before wedding I felt awful and looked it. The steroid made me so swollen and puffy looking safe to safe I couldn’t of hated myself anymore than I did. The day went okay then soon as I eat the food that was it. Another flare left me spending most of the reception in the toilets. I missed the first dance, beth throwing the flowers and cutting the cake. I was gutted, exhausted and in agony but I just had to put on a smile and act normal in front of family. I had the girls for few days after as Beth and my brother went on a mini moon. I got back home and this flare wasn’t easing at all, it was the summer so heat wave didn’t help. We went out with the girls I tried to put on a smile but I was again stuck on the loo crying. I had enough. Enough of the IBD nurse/team not giving a shit *pardon the pun*. So I went to a&e again, had bloods, a canualar & morphine to be told my bloods were okay bit dehydrated and higher CRP but nothing they can do as it was nighttime aka no Gastro avalible. I went home angry, disappointed and physically drained. Finally I saw a new Gastro a few weeks after who demanded I went back on Steroids which I didn’t want to! So fed up I went to my GP and asked to be referred to another hospital. I was warned it could take months waiting but I was willing to wait.
Yet again another thing I regret. The new Gastro is claiming I don’t have Ulcerative Colitis and it’s constipation. Now I’m no doctor or consultant but I know it’s deffo NOT constipation. I had to demand a Sigmoidoscopy which annoyingly by this point my Colitis settled down so not much was shown. I’m yet to see my specialist to discuss things but I’m so drained from everything that I’m yet to make the appointment. To be told you haven’t got an illness that you were tested so many times for and each times have evidence of it is so frustrating. Also in June I had surgery (bowel related but not UC) and recovery was harder than expected so I was fed up.
I’m currently on no medication for my Ulcerative Colitis and weirdly am better. Not 100% but so much better than I was in the summer. I suppose I won’t see my Consultant til the new year and I so regret leaving the first hospital I was under. I feel like I’ve gone 1000 steps back from the days of being told it was just IBS. I have so much going on with my other illnesses that I haven’t really been bothered about this one if that makes sense. So much appointments, different Hospitals, lots of medication as well as brain fog so I’m finding it hard to keep up and jungle everything. Safe to safe I could do with a PA hahah!! Fingers crossed my Bowel behaves over Christmas as I don’t fancy spending Christmas Day on the toilet. Once I see my Consultant in the new year hopefully it will be a possitive appointment. I shall keep updating so do keeep an eye out and the next post from be shall be an health update on another condition of mine.
I know these posts might not be everyone’s cup of tea and I totally understand but I think it’s so important to spread awareness and share your own stories. Me and Beth like to keep it real on our blog and we don’t pretend our lives are perfect. All of our blog posts are real life, honest and truthful. If you have got this far then well done haha. Thank you for reading and do come back for another post :)
Love Katie
