The Guilt & Fear Of A Chornic Illness

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Lately I have been feeling guilt. Guilt for being Chronically Ill. Guilt for not being able to help/work/do general task. I had a major think and had a massive rant on my personal Facebook about it. I have never said on my personal Facebook about my illnesses so it almost felt good to "get it out". Obviously a few people on my Facebook know but about 95% don't. Although I am not one of those people who treats Facebook like a personal diary/put my whole life on there but I felt like I was trying to cover up/act normal so people wouldn't treat me any different. My own Father doesn't really know everything, we don't have a good relationship but when we do speak I choose to just say "I'm Fine".

Guilt is a horrible emotion because I know I can't control this feeling and can't control my illnesses. I wish I could have a normal 9 to 5 job to be able to treat my family to things and to just have a normal day to day routine, I wish I didn't feel the need to hide the fact I am ill to my family, I wish my family would actually take time on reading up on my illnesses to understand and I wish they wouldn't call me "lazy". I have as much guilt about my illnesses as it is so I don't need added on guilt from my family. One person who has literally never judge, commented, called me lazy and constantly is always on the other end on the phone when I need her is Beth. She has IBS so we kind of have similar symptoms which helps her to understand but even if she didn't have IBS I think she would of still understood and been amazing like she is. When I am in Essex staying with Beth, she always ask how I am, makes me toast, makes sure I have a drink for my morning/night medication and if I need to sit down she doesn't call me lazy like most people do.

I have an major fear that I won't be able to play or pick up my nieces. Of course I am in pain constantly but it's bearable at the moment but I know one day the pain will limit the stuff I am able to do now which scares me. Ava knows I have a bad back and she is very good at knowing not to jump on it ect and she is really caring but I don't want her to think that means I can't be the playful fun auntie. I am a "Hands On" Auntie and I always will be. I will not let my illnesses stop being that kind of Auntie. Being with Ava & Bella makes me happy and that sometimes makes the pain easier to deal with.

The fear of having major surgery on my bowels scares me. I have had many of operations in my life but I know what operations people with Colitis have and it bloody scares me. I'm not good when I wake up from any operation and I have a massive panic attack soon as I am woken up so that alone scares me.

The fear of not being able to do things for myself. I mean normal things such as clean, wash, do my make up, dress myself if that makes sense. We all know what Arthritis in the Spine will do in years to come but there isn't a time period of when that time will come. It could be tomorrow or in another 20 odd years. I am independent as it is so this fear is probably the worse out of the fears I have. Everyday or at least I try to everyday, I make sure I always at least put some make up/look decent enough because that alone helps me ALOT, even if I am in my PJ's but having my make up and hair ok does make me feel good. So if I wasn't able to do that I would feel bloody awful and that scares me a lot. IF there was one person I would have "Helping" me would be Bethany to be honest hahaha.

Obviously I have every day to day little fears such as

- Running out of my medication
- Not being able to see the doctor I want to
- Not getting an GP appointment when I need it
- Having a flare up when I am out
- Getting an allergic reaction to one of my medication
- Vomiting
- Being on the train (to Essex) and my back going
- Worrying about eating foods

Those are just a few of the fears I have daily and because I have anxiety I think I make it seems worse than it is sometimes. Beth does reassure me LOTS and sometimes I do need abit of telling if that makes sense. Like Beth will just say YOU WILL BE FINE and sometimes that helps a lot. 

I never realised that guilt and fear would be part of my day to day life. Sometimes it literally makes me so bad that I find myself saying sorry. Sorry for being ill, sorry for not being able to be normal and sorry to all my family.

If anyone reading this has Colitis or any chronic illness, I'd be so grateful if you would get in contact with me. I haven't got any friends or know anyone with an illness that has a massive impact to their life. I'd love to talk to someone who will totally related. Our Twitter is @essextowindsor Our Instagram is essextowindsor and our email is essextowindsor@outlook.com :)

Love Katie xx